https://rayandmave.wordpress.com/  A link to my blog since 2009 for some reason I cant get into update so I have had to start a new one which is very apt as I start a new fight with Mr Nasty so I will keep the story up to date in this new blog




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A Diary of a Mesowarrior living with Mesothelioma A week of Asbestos and Mesothelioma Awareness The Tide Could be Turning

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  I have been quiet on the blog scene as I have been fighting such pain in my arms. I have had a MRI that took 2 hours and it was fond I have compression on my nerves. I have lost the use of my hand -Typing with one hand is weird. WE have been trying to sort out pain killers but they are so strong I feel drunk all day. We have settled on Amitriptyline now. But good news I have signed up for the Nero Trial and that will soon start. Yes another trial. https://clinicalresearch.uhs.nhs.uk/news/targeted-cancer-treatment-could-provide-new-hope-for-mesothelioma-patients This week has been a mile stone in the Asbestos Awareness. People are waking up to the fact that the I industrial asbestos contamination is over but the new wave of contamination from asbestos in our buildings is harming the younger generation now. A Westminster Hall debate took place to discuss the removal of asbestos in workplaces across the UK.  Ian Lavery noted how terrible asbestos-related cancer is, and Jeremy C...
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Catch up on my blog its been a busy month

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 It has been busy this month as so many Companys have asked me to write article's and I have been working on Presentation's for conferences that Ray and I have been asked to talk at  I have been been so busy getting ready for my sons wedding as well . It was a huge surprise that my DIL and Son decided to marry after 17 years of living together.  We stayed in a lovely river hotel that had barges, cabins  https://www.roydonmarinavillage.co.uk/   The wedding was at Chesham Registry Office  So I have the wonderful DIL So caring that she even cut up my meat so i could eat it as I have a very numb hand. I did jokingly ask her to peel a grape ☺ So we had a lovely meal in the restaurant. The next day we travelled home and I caught up on the computer. I had an appointment Friday with my Oncologist who is making an arrangement for an MRI scan as we are worried about the numb and painful hand. I have asked the Mesowarriors for help and it would seem it is common and n...
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A Diary of a Mesowarrior living with Mesothelioma Scan results

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  A Diary of a Mesowarrior living with Mesothelioma Scan results I had to go to my hospital for the results of my scan and I was so worked up about it. We were called in and we sat down and I held my breath. I told the Oncologist that I had lost the power of my left hand and the pain was so bad. This is just what happened right at the beginning in 2008/2009 when I was then diagnosed with Mesothelioma, the whole arm we numb, So we looked at my scan. We could see the new growth by the heart and the one by my ribs has grown by 10%, so once again the tumours must be laying on nerves causing all the pain and numbness. She gave me a prescription for Pregabalin Neuraxpharm which is a drug used for epilepsy but in a smaller dose can be used for pain. After chatting about what treatment to go with, we had to rule out Hit Meso the Proton beam trial as I have already had radiotherapy on my pluraldesis site and I had system 2 trial on my spine so that shuts me out. Im not able to have the MI...
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